Monday, August 11, 2008

School Has Started

School has started for a new year again. They are trying to get started where kids will go to school fro 4 days for 10 hours. I don't think so. I drive Shannon to and from school this year. She has not got into the groove yet. She has not cried but she looks like she wants to. I hate to leave her but I have to go to work. Well I am at work so I am making this short. I want thank the ones that have left comments. Talk to you later
Ladyhawkcj

Thursday, June 26, 2008

Shannon Is An Aunt Again

This is Collin Jake Shannon's new nephew born June 23 weighing 8 lbs and 5 oz.
She wanted to hold him but there was just too many people there and no place for her to sit down and hold him.
We were at the hospital all day waiting on him to be born and Shannon did real good. She is aunt to seven now.

Thursday, June 12, 2008

My " Arte Y Pico " From Denise Bailey

I have been awarded this by Denise at KKl Primitives Blog.
This is what Denise had to say;
Carol's personal blog dedicated to her daughter Shannon, who has Down Syndrome.
I enjoy reading about life with Shannon. One particular post that had me smiling was when Shannon's dad cut her bangs and forgot to put the scissors out of reach. Like any other child, Shannon got the scissors and proceeded to give herself a 'little' trim on the top as well, and according to Carol, there wasn't much hair left!
Shannon may be a 'special needs child' but she is happy, well adjusted, won 'student of the month' at school and had her photo in the newspaper.
She's special because she has the capacity to love everyone and everyone loves her.
It comes across in Carol's writing, how much her child means to her.
I appreiciate this very much.
The "Arte y Pico" award was created and to be given to bloggers who inspire others with their creative energy and their talents, whether it be writing, artwork in all media's. When you receive this award it is considered a "special honor". Once you have received this award, you are to pass it on to at least 5 others.
Please read more info on this wonderful award , visit: http://www.arteypico.blogspot.com/.
I have to choose 5 bloggers that I consider deserving of this award for their creativity, design, posts, and contribution to the blogging community. The rules are as follows:
1) You have to pick 5 blogs that you consider deserving of this award, creativity, design, interesting material, and also contributes to the blogger community, no matter the language.
2) Each award has to have the name of the author and also a link to his or her blog to be visited by everyone.
4) Award-winning and the one who has given the prize have to show the link of " Arte Y Pico "blog, so everyone will know the origin of this award.
5) To show these rules.
This is going to be hard because there are so many that are good. Here are my 5
1. Shinade - The Painted Veil Shinade has some photos that are just beautiful. She has a beautiful blog and has already won one award for extraordinary blog. The graphics are just amazing.
2. Angel - Here and Now 4 Angel Angel blog about surviving childhood traumas are awe inspiring. The battle of triumphing over an eating disorder. It takes courage to face up to your problems and work through thme and share her thoughts and feelings about it.
3. Maitri- Magic and Moments at Dragonfly Cottage a writer, small press publisher and a fiber artist. She promotes animal welfare. She also promotes love and compassion. She donates portions of her income to help with animal welfare.
4. Lisibee- Margie and Edna's Basement This blog is based on humor. I love reading this blog as it always makes me laugh. Laughter is good for the soul and it is sure to fill you with joy.
5. Lynne - The Sewing Mom - Scrapbooking and fabric crafts are unique. I love her fabric purses. Colorful and bright.
Ladyhawkcj

Tuesday, May 27, 2008

The Birthday Girl

This first picture is at Shannon's birthday party. She turned 10 on the 21st and she really liked the pinwheel.
The second picture is at the creek on Memorial Day. As you can see she was having a great time riding on the boat.
Ladyhawkcj

Wednesday, April 23, 2008

Reading Program For Down Syndrome Children

I received this email and I wanted to share
Hello Carol,

I just happened to come across your Blog while I was working, and wanted to let you know about our reading program.
I am the founder of eReadingPro, and was one of the co-founders of Out of the Box Reading. As Out of the Box Reading, we traveled all over North America presenting free workshops to parents and children of Down syndrome. (We’ve had tremendous success in the US). Sadly however, Out of the Box Reading has recently closed its doors due to irreconcilable differences. I have continued on with the same product via a new name: eReadingPro. Our reading program follows a proven system of using a well organized and structured whole-word approach to teaching reading.
I invite you to check out our new site at: http://www.ereadingpro.com. I know you won’t be disappointed! Although we cannot officially post our Product page, you can have a sneak peak here: http://www.ereadingpro.com/products-tbu-temp.htm. Enjoy!

Warm regards,

Denise MacDonald
eReadingPro
www.ereadingpro.com

Ladyhawkcj

Friday, April 11, 2008

WHY ME?



Have you ever asked yourself Why Me? What happened that I have a handicapped child?
I was talking to someone about this several years back when we starting a support group for parents with handicapped children.

Her answer to this question was that
God gave special children to special people.

My Shannon is a blessing to me and I wouldn't change a thing. She is my angel.
Right now she is watching a movie and eating on a hot dog.

She is eligible to take summer school at no cost but I am undecided about that.
Should I let her go or should I let her enjoy summer without school?

Ladyhawkcj

Monday, March 17, 2008

ST PATRICK'S DAY PARADE


Happy St Patrick's Day
Yesterday we got to be in a parade and throw the beads instead of being the to catch them. Our daughter in laws family always does it every year and I was already going to let my daughter Melanie be in it. Yesterday morning at 7 am my husband decides we all was going to go. We got ready to go and met with everyone over at daughter in law Beth's parents house to finish decorating the float. The parade started at 2 pm and we finished decoraring and left to go get in line for the parade. Shannon sat on a stool next to me facing me and her back to the people on the streets. At first I didn't know if she was going to throw any beads or not. When things got started I found out quick enough. I would give her bead and she would throw them over head backwards and she didn't even look to see where they were going. I tried to get her to turn around but I guess she was to scared to turn. But she had a great time and she wasn't the only one. It is a nice family thing to do.
We are planning on doing it again next year.

Thursday, March 13, 2008

MOVIE NIGHT

I had to go an errand for son and it was on a saturday and I asked my husband if he wanted to go and we will just ride around looking around. We loaded up the girls in the car and had to drive about forty minutes to get where I had to go for the errand. Any way my husband drove by the theater to see what was playing and the times it started. We or rather my 11 year old decided that we was going to see Spiderwyck. We paid and went and got our popcorn and drinks ( to bad we can't bring our own it would be cheaper). We went to the theater room to get our seats and I like to sit up high so I could see better. Shannon sits down and waits for the movie to start. She does real good when we go places but especially movies because she loves movies.When we are at home she will play her favorites although she can't read them she knows which ones they are. She is learning more words and you can hear her when she is singing along with the radio. She and I will play the radio coming home from school and we will sing along together. She gets tickled and starts laughing and when she starts laughing I find myself laughing with her. She is such a joy to me.

Ladyhawkcj

Tuesday, February 26, 2008

Down Syndrome- Various Degrees

I have been thinking about this lately and so I have decided to write a post about it. Most people believe that when a child has Down Syndrome that they are all alike. They are not because they are individuals that have their own character and problems. There are different degrees of Down's. In Shannon's case she has a mild type. Although they do have facial characteristics that are alike like the shape of the eyes their faces are individual. Some Down's children have heart conditions and have had to have surgery. Shannon had two holes in her heart when she was born but we were blessed that they closed up on their own without surgery. I know that some people assume that they are all heavyset. Shannon is not and so far she does not have to wear glasses. She does have hypothyroidism and she has to have her blood work checked periodically, ( which she does not like ). The one thing that they all have in common is their capacity for love. Everyone that Shannon comes into contact with says hello to her ( the ones that don't know her ). Or they will say hey Shannon ( the ones that do know her ). That girl knows more people than I do. When she comes to me and tell me "I ove you "and gives me a kiss she just makes me feel so great inside. She has just recently learned how to say her own name. She can be stubborn also but she gets it honestly.

Friday, February 22, 2008

Potted Meat

Shannon recently has acquired the taste for potted meat. She knows that she can go to the pantry and get it and open it. She likes to eat it with a spoon. Yesterday she had gotten her a can of potted meat and opened it and she started hollering and come running to me. She had gotten the opening ring stuck on her finger and couldn't get it off. I thought it was kind of funny. She wasn't to happy having that lid stuck on her finger. I got it off of her and she went on to eat her potted meat. I personally don't see how she can eat it like that but she likes it. That girl can eat and eat and not gain any weight from it. I wish it would wear off on me. I have lost 10 pounds though.

Friday, February 15, 2008

Early Intervention

I had someone email me and asking how to get your child on Early Intervention. You start by going to your health dept or states rehab center. If for some reason you can't find it or get a number for it. You are more than welcome to email me directly and I will help from this end. This is why I started this blog to help and get information out. I pray that anyone with a Down Syndrome child have a blessed day because you surely have been blessed by God with this wonderful child. If there is anything else you have questions about please leave a comment and I will respond.

Ladyhawkcj

Wednesday, February 6, 2008

Our Day at the Mardi Gras Parade

It is Tuesday and it is Mardi Gras!
Our day starts off at 8 am when we have to get up and get dress because we are going to the Mardi Gras parade in Biloxi at 1 pm. We get dressed and leave to go to Wal Mart to get some snacks. Shannon's brother and wife and son are going with us but in their car. We meet at Wal mart and by the time we get gas and everything it is close to 10 am. We get to Biloxi about 11 am to get a good parking spot and you should have seen the traffic. It was unreal bumper to bumper.
We finally get there and got a great spot only to find out from this lady passing by that the parade was not going to go by where we at. Well pulled our cooler and walked down the road a liitle bit and foung another good spot right close to city hall. We had to wait until 1p before the parade and the kids were already getting tired of standing not to mention me.
They had the roads barricaded so you could not get to the floats close by which was good in a way no one got ran over. The parade is starting and Shannon does want to wave her arms to get anything at first butshe got the hang of it real fast. She was jumping up and down and waving them arms like a pro.
The parade lasted for two hours and by the time it was over we had two grocery bags full and mine and Shannon's neck was loaded down with beads. We left there and went to my daughter in laws parents house so that we could rest and take a bathroom break and wait to leave to go to the night parade which started at 5:30 pm.
The night parade was not going to be as long as the day parade but it had cooled off and was damp and the roads were not barricaded. We parked there right at the road in parking spots and let the tail gate down on the truck to sit on and to stand on to catch the beads. When the parade was over we had gotten another bag full of beads.
We left to go home and Shannon fell asleep on the way. We had put in a long day and she was tired. We got home a little after 8 pm and they got a bath and went to bed. It was a fantastic day and when we asked Shannon if she had fun she says yeah.

Wednesday, January 30, 2008

Love and Laughter

Love and Laughter goes hand in hand when you have a child that is special. Shannon has this thing that when she gets a bath and you wash her feet she likes to have the bottoms of her feet tickled. She won't let you just wash her feet they have to get that tickle tickle in. When she first got in the jacuzzi tub she didn't like it but she has learned that when you have bubbles and turn the jacuzzi on it makes more bubbles. I look at her and I can just feel the love bursting up through me. She has such a good sense of humor and you can't help but laugh. She can dress herself pretty good but sometimes she can come up with a pretty wild ensemble. Her favorite thing to wear when it is cold is a camouflage jumpsuit. She loves to be outside and swing on her swingset or jump on the trampoline.She is in bed now and I don't have a hard time to get her in bed. I just tell her it is night night time and she grabs my hand and I take her to bed and cover her up. She has just started since Christmas wanting her baby doll in bed with her. well good night for now.

Ladyhawkcj

Tuesday, January 22, 2008

Fathers and Daughters

I wanted to talk a little about Shannon's father and his relationship with her. Although we have our other daughter whom we love very much. It is special with Shannon. We know that eventually our other daughter will be grown and go out on her own. Shannon on the other hand will be with us for a long time. Shannon has her daddy wrapped around her little finger. He tries not to show it but its there. It is only natural because although she is independant in a lot of ways but she depends on us alot too. She does something and looks at her daddy and smiles and you can't help but laugh. We treat her like the others but I think we do let her slide a little bit. She loves her daddy a lot and loves to ride on the four wheeler and the tractor with him. You can hear her laughing and it just makes want to you smile and laugh too. We wonder about her future alot about who will take of her when we're not here. But she has 2 sisters and 3 brothers that will do it. I somehow think it will be Melanie because she is closer to her. Anyway that is all in the future so I am not going to dwell on it right now. Well I am going to go I have to put Shannon to bed as she has school tomorrow.

ladyhawkcj

Wednesday, January 16, 2008

Playing Hookey

Today the girls played hookey from school. The weather was to bad to let them go to school. It just amazes me that when you get them up for school they want to sleep but when they don't have to get up early that is when they want to get up. Shannon gets up when it first starting to get daylight and that is when I get my best last minute sleep. The first thing she likes to do is get something to eat. She loves to eat. I wish I could eat like her and not gain the weight. Right now she has this night gown that she likes to put on over her clothes. Well enough for now

Friday, January 11, 2008

A Long Night at Work

I am sitting at my desk here at work just waiting on time to start giving medications again. I just wanted to say that last month Shannon made student of the month and got her picture in the newspaper. I saw the award that she brought from school but I had no idea that it was going to be in the paper. I was coming to work last friday night when my niece called me and told me that Shannon's picture was in the paper. I stopped by the store and picked up a paper and sure enough she was there. It was neat to see her there. I put a new background on my blog so I am having to redo it. Shannon also has a new haircut. Her Dad trimmed her bangs and forgot and left the scissors on the bar. Needless to say Shannon preceded to cut her hair on the top of her head to where she almost didn't have any hair left. She makes me laugh, can be a pain in the backside but she is an original and I love her. She loves riding on the four wheeler and the tractor with her Daddy. She has a bicycle but I somehow don't think she is ever going to learn to ride it before she gets to bigt for it. She just now is getting into baby dolls. Well gonna go for now.

Ladyhawkcj

Friday, January 4, 2008

Just Everyday Stuff

I am sitting here in my car waiting till time to go in at work and I was thinking this night 1 week ago my husband called me to tell me that Shannon lost her first tooth. The tooth fairy came but it didn't mean anything to Shannon. In case any one is wondering about the you tube. It is a song called I'm a Gummy Bear. I took my daughter Melanie to see that movie The Waterhorse and they played that song on the screen before the movie came on. I like it so I found it and put it here. Oh yeah if you haven't seen the movie Waterhorse you should it is a good movie. I want to see the Chipmunks next. When was the last time you went to the movies? It is fun but expensive when you start buying all your snacks and drinks. Too bad we can't bring our own popcorn and drinks. I would have brought Shannon to the movie too but she wasn't feeling to good. Well gotta go for now.
Ladyhawkcj