Monday, December 31, 2007

Christmas is Over

It is finally over and we has a good Christmas. We had family over for a Christmas Eve party and had a great time. Shannon rode on the four wheeler and she loves it. She got a big baby doll for christmas that she likes to sleep with. She also got a couple of movies that she likes to watch a lot. It is New Years Day now and Dick Clarks Rocking New Year just went off a few minutes ago. Going to go now. It has been a long day. Talk to you later

Wednesday, December 19, 2007

Christmas Shopping

Yesterday I went Christmas shopping and got all my Christmas shopping done. Hallelujah.
I wrapped Shannon's gifts and guess what she did this morning. I don't know how she knew but she got one of her presents and unwrapped it this morning now I am going to have to rewrap it. When She was younger she had a hard time in unwrapping the gifts, she has no problems now. Christmas is my favorite holiday but spring is my favorite time of year when all the flowers are blooming. My Christmas cactus bloomed pretty good this year. Friday they get out of school early and they don't go back until after the New Year. Well I am going for now and I hope everyone has a Merry Christmas and a Happy New Year.
Carol

Wednesday, December 5, 2007

Christmas Is Coming

Christmas is coming and I have to figure out what to get Shannon for Christmas. When you have a child that can not tell you what they want that makes it a little harder in trying to figure out what she wants. That is where knowing your child comes handy. Shannon loves music and movies. Right now it is Nanny MacPhee and believe you me she knows her movies. When she has a favorite she will play that movie over and over and over again. She was watching Thumblelina the other day and she was singing with the song that was playing on it. I was tickled because there was new words she was saying. she will get up sometimes and dance too. That is a site to see. Shannon makes me laugh and I just want to hug her and kiss on her all the time. Well it is time to go for now. I would appreciate any ideas for Christmas. Oh yeah I put my Christmas tree up last week and my 10 year old daughter and I decorated it and guess what Shannon did the next day. She removed most of all the ornaments. Needless to say she does not mess with the tree again.
So long for now

Tuesday, November 13, 2007

They Aren't Stupid

I have been called to school several times to pick Shannon up because they say she is sick or not acting like herself. They told me she is just laying her head down on the table and she normally just doesn't do that. Well I go and get and bring home and she is not sick at all. She gets something to eat and turns the tv on and gets me to start her favorite movie that she likes to watch on. I went to school This past Monday and told them that Shannon is not sick. It can be one of several things, She is tired because she is having to get up earlier to catch the bus, her allergies are acting up and I have given her medicine, or she has just learned that if she puts her head down they are going to call me and she is going to get to come home. I don't think she likes her teacher and she can't tell me in words but in actions. I may be wrong but sometimes it is hard to figure out what she wants. Tell me what you think. Do you think that she has just learned what will get her to come home or not? Interested in your opinion.

Ladyhawkcj

Thursday, November 1, 2007

Trick or Treat

Last night we went trick or treating on a trailer with hay in it. Shannon had a great time. When Shannon goes up to get the candy and hold her bag out. She continues to hold her bag out like that's not enough give me more. There were several people that would give her a handful of candy when they saw that she had Downs. One lady said this is for you because you are special and God's gift. I agree with that because she is God's gift us. At first we would have to walk with her but then we let her go and follow the other kids that was with us. She would look back and make sure of where we were and keep on going to get her candy. It was about 9 pm when we got done and she was tired out that she fell asleep in the car on the way home. If you are interested to see what she looks like her pictures will be posted on myspace site pretty soon.
http://myspace.com/ladyhawkcj
ladyhawkcj

Tuesday, October 30, 2007

Rememberences

I remember when Shannon was not even a year old and it took a long time in her learning how to just sit up. When you have a handicapped child there is a program called The Early Intervention in which they work with your child up till they are 3 years old. Then your child will start going to a regular elementary school in which they have special classes for handicapped children. They have speech therapy, physical therapy and occupational therapy come in and work with your child. Shannon has a sister that is a year older than her so she had great motivation in wanting to get around. When the workers from the early intervention program would start a new area to work on Shannon would do it on her own with our help until she could do it on her own. It takes a down syndrome child longer to be able to do the things that normal children would do. We were tickled just to see her sitting up on her own. She had to learn about eating with a spoon and drinking from a cup which is working fine motor skills. It took a long time in her to master her skills but when she did she was happy and we were happy also. When it came to learning how to stand and walk once she she mastered that then she was running. Even now when I see her running I get tickled because she doesn't run like everyone else but she does run and it is funny to watch her. She is now starting to talk a little more but I remember when she was younger she would get up on the kitchen table and point her finger at me and her daddy and just jabber away. I told my husband that I wonder what she was saying but it might be better for her that we didn't. We treat Shannon just like we do out other daughter. She is very smart she might not be able to read but she knows which movies she likes to watch. I think she goes by the picture on the case. She loves anything with music and dancing in it. I guess this enough for one day.

Ladyhawkcj

Monday, October 29, 2007

My Daughter Shannon

Shannon was born on May 21 1998 and my husband and I had no idea that anything was wrong with her. After the pediatrician examined her it was determined that 1. she had down syndrome, 2. she had 2 holes in her heart. 3. they thought she had leukemia, 4. she was born 2 weeks early and she couldn't eat without turning blue. She was sent to Womens and Childrens hospital in Mobile Alabama to receive treatment. After several blood tests and bone biopsy it was determined that she did not have leukemia but had what they called Transient Myloproliferative Disorder in which you have numerous amount of immature white blood cells but after awhile she started to produce mature white blood cells but we still have to monitor that because they said that later in life it could develop into leukemia. By the time that she was a year old the holes in her heart closed on their own. After 2 weeks in the hospital she was able to eat a certain amount in a certain amount of time. Through all the problems and tests that she had she maintained a smiling and loving dispostion. She is my heart, my angel, and my inspiration. This is all for today.
Ladyhawkcj

Friday, October 26, 2007

The Down Syndrome Child

I know that everyone at one time or another has seen a down syndrome child. Maybe have one in their family or knows someone that does. I just want to say from experience that a down syndrome child is one of the most lovable people in the world. I sometimes think about my daughter Shannon would I want her to be a normal child without the difficulties that she has?
I would have to say no I would not her to be a so called normal child in the fact that she would not be who she is now and I love her the way she is. This site was created for her. I wanted to share what it is like being her mother, and also if anyone has questions I can answer from my experiences. This is a short to start with but I will have plenty to say about her. So keep in touch.
Ladyhawkcj